In recognition of the13th annual Metastatic Breast Cancer Awareness Day, read one patient's inspiring journey, a story punctuated by incredible bravery and indomitable hope.
“It’s hard to face your own mortality.” -Retreat participant
When I was asked to write for ACCC to acknowledge National Breast Cancer Awareness Month and Metastatic Breast Cancer Awareness Day (tomorrow, October 13), I wanted to do so with a message of hope and joy. In 2009, October 13th was established as Metastatic Breast Cancer Awareness Day through unanimous U.S. House of Representatives and Senate resolutions.
I was diagnosed with Stage II breast cancer in 1991 at the age of 46. I was terrified, especially of the unknown, but I was determined to beat it, and I did. Eighteen years later, the cancer returned. I was diagnosed with metastatic breast cancer in September 2009. I again made the personal choice to educate myself. This has allowed me to make informed choices in my treatment, become an advocate for others, participate in research projects, and serve as a volunteer resource.
Living with metastatic breast cancer for 13 years has taught me that there is more to this than just surviving. It is also important to maintain a balance in your mind, body, and spirit. It has made me a better me. Hear me out. I learned early on that laughter builds T-cells which helps fight cancer. Laughter gave me a pathway to discover joy. I am humbled by the way joy can touch our lives and am thankful that joy continues to help me define my purpose.
Breast cancer is the fifth leading cause of death among women worldwide, and metastatic breast cancer is responsible for the majority of deaths from breast cancer. Five-year survival rates show that women are 29 percent likely to survive and men are 22 percent likely to survive the disease. It is important that I note that breast cancer at any stage is treatable. As treatments improve, patients living with metastatic breast cancer are living longer, with a better quality of life.
But you know what is also really important, hope.
This brings me to my mentor and cherished friend, Lillie Shockney, RN, BS, MAS, ONN-CG, university distinguished service professor of breast cancer and former administrative director at Johns Hopkins Breast Center in Baltimore, MD. I met Lillie at a social gathering in 1991. We were both being treated for early-stage breast cancer. We became fast friends. I made her laugh, she made me laugh, and we were able to get through a very emotional time together. Lillie has been there throughout my now 31-year journey.
For over a decade, retreats have been held for patients with Stage 0 through 3 breast cancer. These retreats help attendees face their emotional stressors with the disease. Soon enough, patients living with metastatic breast cancer began asking for their own retreats. These retreats are now held for patients with metastatic breast cancer, their spouses, and their female caregivers. Through these three-day and two-night retreats, participants have found they are not alone on their cancer journey. There are others just like them who are facing their own mortality.
“The most impactful piece of the event is when the men get together and share how they cope. We find that they find they are not alone. And, among the women, the same, someone who understands what they are going through.”
-Lillie Shockney
These retreats are one of Lillie’s greatest achievements.
For me, I end this noting that I am without question an empath. As an empath, I have empathy for both the stressors and the joys of life. The retreats that are held for patients with metastatic breast cancer have empowered me to share my own cancer-related stressors with others and provide encouragement to never let anyone take away their hope. Google defines hope as the “want for something to happen or be the case.” While my definition of hope has changed many times throughout my cancer journey, I still have plenty of hope and the ability to share it with others.
I invite and encourage you to find joy and hope in your journey.
Namaste.
On September 30,
President Biden released a proclamation
, identifying October 2022 as National Breast Cancer Awareness Month. This proclamation was done so in recognition of the many patients and survivors of breast cancer and to honor all those that we have lost from the disease. More resources for patients living with metastatic breast cancer include:
For more information, visit the ACCC Metastatic Breast Cancer Project webpage.
Judy Ochs is a survivor of metastatic breast cancer and volunteer with patient advocacy projects.
