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Home / Education And Resources / Cancer Types / Hematologic Malignancies / Multiple Myeloma

MULTIPLE MYELOMA

Multiple myeloma, also known as myeloma, is the third most common hematologic cancer (cancer of the blood). However, compared to more frequently occurring cancers (e.g., breast, prostate, lung, and colorectal cancers), multiple myeloma is relative rare and accounts for only 1.6 percent of diagnoses each year. For 2018, the American Cancer Society estimates that 30,770 new cases of myeloma will be diagnosed in the U.S.1 Due to the less common occurrence of multiple myeloma, providers are less likely to diagnosis and treat these patients on a regular basis.

1. Siegel RL, Miller KD, Jemal A. Cancer statistics, 2018. CA: Cancer J Clin. 2018;68:7-30.


Resource Library

Practice Guidelines

  • NCCN Clinical Practice Guidelines (requires log-in) *Please see "Patient Education and Support" section for NCCN guidelines for patients with myeloma.

Patient Education and Support

  • ACCC Patient Assistance & Reimbursement Guide - Up-to-date information on cancer drug assistance and reimbursement programs to help your patients alleviate the financial burden of their treatment.
  • Health Tree by Myeloma Crowd - Health Tree is a patient led community that includes physicians and researchers. This is a place to find the best myeloma treatment options to help accelerate a cure for multiple myeloma. Learn more about Health Tree.
  • The Leukemia & Lymphoma Society:
    • Webpages
    • Books plus information about adherence for myeloma patients
    • Webcasts
    • Videos
    • LLS Community with group for myeloma patients
    • Online myeloma chats (each chat is moderated by an oncology social worker)
  • MediFind Resource Page
  • MMRF online patient education toolkits
  • The Myeloma Beacon
  • Myeloma Central (supported by Celgene)
  • National Cancer Institute (NCI) Patient Resource Section
  • NCCN Guidelines for Patients with Multiple Myeloma
  • NCCN Quick Guide - Multiple Myeloma - The NCCN Quick Guide Series provides treatment summaries in short, easy-to-use reference sheets for people with cancer and the general public.
  • Patient Resource

Blogs/Webinars

Cancer Support Community (CSC)

  • Frankly Speaking About Cancer - Multiple Myeloma
  • Managing Long Term Side Effect of Multiple Myeloma (2-hour webinar)

Clinical Trial Support

The Leukemia & Lymphoma Society
  • The Leukemia & Lymphoma Society Clinical Trial Support Center (CTSC) - Specialists are nurses specially trained in hematologic malignancies, clinical trials, and patient education/ support. Patients will be provided with a list of appropriate clinical trials to discuss with their treating physician.

    Patients will have direct access to ‘their’ LLS Clinical Trial Specialist for the duration of their search. Patients and caregivers can work one-on-one with The Leukemia & Lymphoma Society’s (LLS) Clinical Trial Specialists who will personally assist them throughout the entire clinical-trial process, providing an additional resource to the healthcare team. LLS offers help for patients in understanding and identifying clinical trials and in connecting with clinical trial sites.
Organizations, Societies, and Foundations
  • American Society of Hematology (ASH) - Resources for patients, researchers, advocates, and clinicians.
  • American Society of Clinical Oncology (ASC): Best Practices in Myeloma Care and Best of 2017 in Multiple Myeloma
  • Cancer Support Community
  • International Myeloma Foundation: The International Myeloma Foundation is an American non-profit organization serving patients with myeloma, a cancer of plasma cells in the bone marrow. The IMF provides support and information for family members, caregivers of myeloma patients, physicians and nurses, through its vast resources and myeloma support groups for patients.
  • International Myeloma Society
  • Oncology Nursing Society (ONS)
  • Multiple Myeloma Center for Nurses: Find multiple myeloma resources for nurses including educational videos, expert resources, and request a visit from a clinical nurse consultant.

Featured Publications

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Multidisciplinary Multiple Myeloma Care: Models of Quality Improvement [Oncology Issues]

Alexandra Howson, PhD

The Association of Community Cancer Centers (ACCC) has supported QI initiatives for many years through its Visiting Experts Program. In 2020 ACCC offered QI programs designed to optimize care for patients with multiple myeloma. Via custom workshops, multidisciplinary team members from three cancer programs appraised their own challenges and opportunities to improve care and developed QI plans that were specific, measurable, and actionable over a six-month time frame. The QI time frame included workshop participation, baseline data reporting, progress calls with ACCC, and outcomes evaluation.

Thank you to our Cancer Program Members:

  • CalvertHealth Medical Center, Prince Frederick, MD
  • Central Care Cancer Center, Bolivar, MO
  • Holy Cross Hospital, Silver Spring, MD
Download Now
Multidisciplinary Multiple Myeloma Care: Models of Quality Improvement [Oncology Issues]

On-Demand Webinars

Telehealth Strategies for Multiple Myeloma Medication Dispensing During COVID

COVID-19 has impacted how providers are dispensing multiple myeloma medications and providing care to patients during the pandemic. Learn how to identify those effects to help mitigate them and implement strategies to improve telehealth medicine during the pandemic.

Make the Most of Financial Resources and Improve the Reimbursement Process in Your Cancer Program

Learn how to better identify and utilize financial resources that are available for patients with multiple myeloma, and implement strategies to improve insurance verification procedures.

Communication Strategies for Discussing Multiple Myeloma with Patients

Effective communication with patients is key to providing optimal care to patients. Learn the most effective strategies for successful conversation with patients undergoing treatment for multiple myeloma and discover valuable resources that can help.

Emerging Therapies in Management of Multiple Myeloma and Best Practices for Implementing Care

Expert faculty will Identify new emerging therapies in the care for multiple myeloma patients and provide examples of how to operationalize care of this patient population.

Risk Factors for Multiple Myeloma

Causes, risk factors, and prevention vary among cancer types, and multiple myeloma presents its own unique risk factors, such as age, gender, race, and family history, among others. Learn about the various precursor conditions for multiple myeloma and how to determine the risk of developing the disease.

Addressing Disparities and Access to Clinical Trials Among Patients with Multiple Myeloma

Learn how to identify key disparities in clinical trial access for patients with multiple myeloma and explore strategies that can help improve access for underserved communities. (October 21, 2020)

CANCER BUZZ TV

[VIDEO PODCAST] Ep 04: Chronic Lymphocytic Leukemia: Navigating Uncertainty

Jul 22nd 2021

Three clinicians discuss their experiences with difficult conversations on the relative risks and benefits around treatment decisions in this rapidly evolving environment.