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Home / Education And Resources / Patient Centered Care / Survivorship Care

SURVIVORSHIP CARE

"An individual is considered a cancer survivor from the time of diagnosis, through the balance of his or her life. Family members, friends, and caregivers are also impacted by the survivorship experience and are therefore included in this definition."

- National Cancer Institute (NCI) Office of Cancer Survivorship (adapted from the National Coalition for Cancer Survivorship)

In 2006 the Institute of Medicine (IOM) influential report From Cancer Patient to Cancer Survivor: Lost in Transition focused attention on unmet needs of the nation's growing population of cancer survivors. Included in the report's call to action was the recommendation "that each cancer patient receive a 'survivorship care plan.' "

Since the report's publication, the population of cancer survivors in the U.S. has grown from 10 million to nearly 17 million. This number is expected to reach 22.1 million by 2030.1

In late 2019, the American College of Surgeons Commission on Cancer (CoC) released Optimal Resources for Cancer Care: 2020 Standards for cancer program accreditation. The newly revised standards went into effect in January 2020; however, many of the new standards are phased in, including Standard 4.8 Survivorship Program.2 This standard requires that the cancer program's cancer committee "oversee the development and implementation of a survivorship program directed at meeting the needs of cancer patients treated with curative intent." With this phased-in standard, the CoC calls for a coordinator of the survivorship program (Standard 2.1), and the development of a survivorship program team composed of multidisciplinary cancer care professionals (e.g., physicians, nurses, advanced practice providers, social workers, nutritionists, physical therapists, and other allied health professionals). This team is responsible for determining the services and programs - available on-site or by referral - required to meet the needs of cancer survivors. The CoC includes survivorship care plans as among the services a survivorship program may choose to include.

Although many cancer programs and practices have initiated integration of survivorship care plans into the continuum of care, multiple facets of the current healthcare delivery system can make the process of developing and delivering these plans an ongoing challenge.

Despite obstacles, survivorship care remains an important area of ongoing discussion not only because the population of survivors continues to grow, but also new treatment paradigms are emerging, requiring fresh perspectives on the post-treatment needs of patients. In 2018, the National Academy of Medicine (formerly the Institute of Medicine) published proceedings from its workshop on Long-Term Survivorship Care After Cancer Treatment.

ACCC is pleased to offer a resource that explores the new frontier of Survivorship Care Plans for Patients Receiving Immunotherapy. The publication describes processes for developing survivorship care plans (SCPs) for patients treated with immunotherapy, effective practices in SCP design, and considerations for SCP delivery for this patient population.

Learn More

Sources:

  1. American Cancer Society. Cancer Treatment & Survivorship: Facts & Figures 2019-2021. Atlanta: American Cancer Society; 2019. Last accessed January 8, 2020.
  2. American College of Surgeons. Commission on Cancer. Optimal Resources for Cancer Care: 2020 Standards. Last accessed January 10, 2020.

In 2007-2008 ACCC conducted an educational initiative to raise awareness about the importance of comprehensive survivorship programs. ACCC President (2007-2008) Richard B. Reiling, MD, FACS, selected survivorship as his president's theme, and ACCC developed Comprehensive Survivorship Services: A practical guide for community cancer centers.

Publication and distribution of ACCC's Comprehensive Survivorship Services: A Practical Guide for Community Cancer Centers was made possible through a sponsorship funded by AstraZeneca and Abraxis Oncology. 


Rapid Practice Change During COVID-19 Leads to Enduring Innovations and Expansion of Integrative Oncology Services

Rapid Practice Change During COVID-19 Leads to Enduring Innovations and Expansion of Integrative Oncology Services

Danielle Gentile, PhD, et al.

This cancer program continues to meet patients’ psychosocial needs through enduring telehealth expansion, livestream groups and classes, and on-demand digital repositories.

News & Media

Survivorship Care in the Era of Immuno-Oncology

Mar 11th 2021

The efficacy of IO has led to a growing population of patients living with and beyond cancer. This has challenged original concepts of survivorship care, starting with the very definition of “survivorship.”

[Publication] Survivorship Care Plans for Patients Receiving Immunotherapy

[Publication] Survivorship Care Plans for Patients Receiving Immunotherapy

Dec 18th 2019

ACCC has developed a medical wallet card for patients on immunotherapy for cancer.

From the ACCCBuzz Blog

Childhood Cancer: A Journey Beyond Treatment

Childhood Cancer: A Journey Beyond Treatment

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Childhood cancer, although rare, remains the leading cause of death by disease in children under the age of 15 years. Despite its rarity, the impact of the disease in young people is long-lasting, with challenges extending well beyond the completion of treatment.

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LYTE: Living Your Truth Empowered

Jul 23rd 2024

LYTE is a non-profit organization that aims to meet the needs of a growing and diverse breast cancer survivor community by providing expert health and wellness coaching.

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A Progress Report on Cancer Immunotherapy

Jun 17th 2024

ACCCBuzz recognizes June as Cancer Immunotherapy Month.

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Promoting Health Equity: Unite for HER's Vision for Equitable Cancer Care

Mar 13th 2024

Discover the mission of Unite for HER—a national nonprofit organization dedicated to enriching the health and well-being of those affected by breast and ovarian cancers.

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NCCN Patient Advocacy Summit: The Significance of Patient Navigation

Jan 11th 2024

This is the second blog post is on the NCCN Patient Advocacy Summit: Navigating the Care Continuum from Screening Through Survivorship.

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NCCN Patient Advocacy Summit: Navigating the Care Continuum from Screening Through Survivorship

Jan 3rd 2024

For their final policy summit of 2023, the NCCN invited multidisciplinary stakeholders to Washington D.C. for a discussion focused on patients with cancer receiving comprehensive and equitable care.

More Survivorship Care Blog Posts

From Oncology Issues

Young Adult Parents Tap into Long Distance Support

Young Adult Parents Tap into Long Distance Support

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We proposed creating an online video support group to enable patients with cancer who would otherwise have difficulty attending such groups to participate virtually.


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Therapeutic Art: Transforming Self-Awareness for Those Impacted by Cancer

By Vicki Mackie, Xinyi Yang, MSPH, Alex Kaizer, PhD, and Carlin Callaway, DNP

This Colorado-based nonprofit organization offers free therapeutic art sessions to patients with cancer, their caregivers, and long-time cancer survivors.

Effective Approaches to Address Transitions

Effective Approaches to Address Transitions

Anna Weiss, Jocelyn Bushart, Kristina Galton, Carli Kotula, Crystal Regis, and Alissa Huston

With more and more patients being diagnosed with breast cancer and an improved prognosis for those living with the disease, there’s a clear need to find ways to offset high patient volumes while maintaining high-quality care for longer-term survivors.

New Horizons in Oncology Rehabilitation

New Horizons in Oncology Rehabilitation

Christopher M. Wilson, PT, DPT, DScPT; Reyna Colombo, PT, MA; and Basil Hakmeh, MP

HBeaumont Health in metropolitan Detroit is actively preparing its physical therapists (PTs) and occupational therapists (OTs) to provide patient-centered, diagnosis-specific, compassionate care to cancer patients through advanced training by development of an accredited clinical residency program in cancer rehabilitation.

Supportive Oncodermatology

Supportive Oncodermatology

Stephanie Kao, BA, and Adam Friedman, MD

Dermatologic adverse events can have a profound impact on the physical, emotional, financial, and psychosocial health of cancer patients. Discover how the emerging collaborative subspecialty of supportive oncodermatology aims to address cancer-related dermatologic events.

Collaborative Care: A Model for Embedding Counseling in Oncology and Palliative Care

Collaborative Care: A Model for Embedding Counseling in Oncology and Palliative Care

By Earon Lehning

Embedding counseling services into oncology and palliative care across 6 clinic locations landed this program a 2023 ACCC Innovator Award. Learn how this model allows patients to receive psychosocial care from treatment through survivorship.

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