Sarcoma is a relatively rare cancer in adults and accounts for less than 1% of new adult cancer diagnoses. Most sarcomas have no known cause, but a few risk factors have been identified, including a history of radiation therapy, a history of long-term lymphedema, certain genetic disorders, and exposure to certain chemicals.
Treatment for sarcoma often includes surgery in combination with radiation therapy and/or chemotherapy. In some situations, sarcoma may also be treated with newer targeted therapies or immunotherapy.
Because it is a rare cancer type, many health care providers may not have experience with diagnosing or caring for sarcoma patients. ACCC and its partner, the Sarcoma Foundation of America (SFA), are working together to help increase awareness about sarcoma and how to improve quality of care for patients and caregivers impacted by this type of cancer.
Raising awareness about sarcoma is essential to reducing treatment delays and preventing misdiagnoses of this rare cancer with over 100 subtypes. The Association of Cancer Care Centers (ACCC) is dedicated to providing up-to-date information on sarcoma management and the unique challenges associated with diagnosis and treatment in community settings. In this episode, CANCER BUZZ speaks with Richard Riedel, MD, professor of medicine at Duke Cancer Institute, to explore the critical resources needed for sarcoma care, including psychosocial support and the financial difficulties often faced by patients. Dr Riedel also discusses the future of treatment options in community-based settings and the importance of collaboration between community providers and academic/specialty centers. Additionally, CANCER BUZZ speaks with Katie Wintergerst, a sarcoma patient, who shares her personal journey and the challenges she encountered on her path to diagnosis.
Explore this collection of resources from project partner Sarcoma Foundation of America (SFA), designed to enhance and support sarcoma cancer care. Resources are available for patients, caregivers, health care providers, social workers, patient advocates, and all members of the multidisciplinary care team.
This video provides an overview of key updates in sarcoma care from the American Society of Clinical Oncology (ASCO) meeting. Total run time: 1:15. Date Aired: July 15, 2024
In this video, a panel of experts provide an overview of genomic testing and discuss current and potential future applications of genomic testing for the diagnosis and treatment of sarcoma. Total run time: 1:30. Date Aired: March 1, 2022
This online community provides support for those affected by all subtypes of sarcoma. This is a place to connect with others to share experiences regarding diagnosis, treatment, clinical trials, care giving, and social and emotional health
This infographic includes a list of U.S. medical centers and hospitals specializing in sarcoma, as well as details about sarcoma specialty centers.
In this video, patients discuss their experiences with sarcoma including diagnosis, treatment, and clinical trial participation. Total run time: 1:00. Date Aired: December 1, 2023
In this video, a panel of experts go in depth about sarcoma clinical trials, including their role in advancing treatment, challenges and benefits of clinical trials, and how patients can participate. Total run time: 1:02. Date Aired: September 27, 2023
This webpage can help you stay abreast of SFA's engagement and education sessions, webinars, and briefings on the latest developments in sarcoma research, treatments, and public policy issues.
In this video, panelists discuss promising advancements in the testing, diagnosis, and treatment for sarcomas. Total run time: 0:56. Date Aired: December 8, 2022
This infographic provides an overview of sarcoma including sarcoma types, symptoms, diagnosis and treatment.
This form can be used by cancer programs to register to be added to SFA's list of Sarcoma Centers that specialize in the diagnosis and management of sarcoma.
In this video, experts provide an overview of cancer immunotherapy and discuss immunotherapy treatments specific to sarcoma. Total run time: 0:59. Date Aired: May 24, 2022
The Sarcoma Foundation of America Clinical Trial Matching Service offers patients, caregivers and health care professionals up-to-date information about sarcoma cancer clinical trials throughout the U.S. and Canada. The service features an online search feature for clinical trial options that match a patient's specific diagnosis and treatment history. Direct support from a clinical trial navigator is also available through the service.
This video, which is part of the SFA's Sarcoma Subtype Series, provides an overview of Desmoid Tumors. Total run time: 57:56 Date Aired: July 10, 2024
In this video, experts discuss the role of radiation therapy in the treatment of sarcoma. Total run time: 1:01. Date Aired: November 16, 2021
This infographic includes a list of SFA educational webinars for the multidisciplinary cancer care team. Topics include sarcoma clinical trials and research, genomics, treatment, and more.
