Presenting another perspective on the cancer patient experience, ACCC 36th National Oncology Conference featured speaker Laura Holmes Haddad shared her autobiographical story of what many might view as a “not typical” cancer patient. When she was diagnosed with stage IV inflammatory breast cancer, Holmes Haddad was a 37-year-old mother of young children. Her experiences and those of others diagnosed with cancer between the ages of 20 and 65 reveal room for improved communication and opportunities to better meet the needs of what Haddad has dubbed, “the modern cancer patient.” Of note, Haddad said that these patients account for nearly half of all new cancer diagnoses.
Drawing on her own experiences and those of others, Holmes Haddad’s retelling of unaddressed questions and real-world logistical challenges brought “The Changing Face of the Cancer Patient Experience” to life. She asked her audience members to consider how family obligations and responsibilities combine with clinical and other practical considerations when patients must make decisions about treatment options. Recounting the lived experience of how a patient (and family’s) home life can be affected by cancer treatment and medication regimens, Haddad asked attendees to consider whether they are asking their “modern cancer patients” the right questions. Questions such as: Do they live alone? Are they responsible for the care of young children, elderly parents, or an ill spouse? Are they able to drive? Are they able to work? Cancer programs need to support all patients physically, emotionally, and financially, Haddad said. Asking the right questions is the key to offering the right support.
With 2.8 million children under age 18 living with a parent affected by cancer, “asking your cancer patients if they have kids is an important first step,” Holmes Haddad emphasized. To meet the needs of the modern cancer patient, those patients have to plan their cancer journeys not only for themselves, but also for their children.
Holmes Haddad also pointed to the need to bridge the gap in meeting the care needs of both cancer patients and survivors. “Every single cancer survivor I’ve talked to said [that] the care team never discussed the sexual [side] effects of their cancer treatment,” said Holmes Haddad. “Making sure that someone on the team is reaching out to cancer patients about oncology fertility is key.”
Holmes Haddad added that financial counselors play an essential role in helping modern cancer patients navigate the cost burden of cancer. Patients in this age group (20-65), unlike older or younger patients, are mid-career, often have a lower amount of savings, don’t qualify for Medicare, may not have employer-based insurance, and may be the primary breadwinner for their family.
What actions can cancer programs take now to better support their modern cancer patients? Holmes-Haddad concluded her presentation with these practical suggestions:
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