Minnesota Shared Decision-Making Collaborative. Broad set of resources to assist in developing a shared decision-making (SDM) program, including a roadmap of steps, case studies, and tools.
Decision Support Toolkits for Specialty Care. From the Center for Shared Decision-Making at Dartmouth-Hitchcock Health, while these toolkits are specific to breast cancer and osteoarthritis, they provide a useful framework for integrating decisional support into clinical care models and may be effective as models for other cancer types.
Training/Capacity Building
AHRQ SHARE Approach. AHRQ’s SHARE Approach is a five-step process for shared decision-making that includes exploring and comparing the benefits, harms, and risks of each option through meaningful dialogue about what matters most to the patient. Includes a workshop curriculum, tools, and webinars on SDM skills, communication skills, and SDM implementation.
Midsouth PTN Shared Decision-Making Toolkit. This toolkit, developed by the Midsouth Practice Transformation Network (PTN), provides an overview of the steps in Shared Decision Making, explores key skills to improve provider-patient communication, and introduces resources that can aid in the process.
Shared Decision-Making E-learning Course. Provided by the Minnesota Shared Decision-Making Collaborative, this one-hour e-learning course covers the basics of SDM.
Tools for SDM Implementation
Ottawa Personal Decision Guide. A generic tool designed to be used for any health decision and can be used by healthcare professionals to help facilitate decisions. Available in multiple languages.
“Know Yourself” Worksheet. A tool developed by the National Coalition for Cancer Survivorship (NCCS) that helps patients prepare for a visit to their doctor and discuss their preferences with their family and healthcare team. Worksheet includes discussion of goals and quality of life priorities.
Measurement and Evaluation Tools for Palliative Care. Developed by the National Palliative Care Research Center, a compilation of tools to assess aspects of palliative care including pain and symptom management, functional status, psychosocial care, caregiver assessment, and quality of life.
I*CARE – Interpersonal Communication and Relationship Enhancement. Online learning and in-person training developed by MD Anderson Cancer Center, covering culturally competent communication, challenging emotional conversations with patients and families, talking about treatment side effects, and more.
Goals to Care: How to Keep the Person in “Person-Centered”. Guide developed by the National Committee for Quality Assurance (NCQA) provides advice on how to elicit and negotiate goals and support goal attainment in health and person-centered care.
Decision Making at the Point of Care: Voices of Oncology Providers, A Patient Values Initiative Issue Brief. Produced by CancerCare through the Patient Values Initiative, a summary of qualitative research to understand some provider perspectives on the importance and utility of learning about their patients’ lifestyles and priorities, and how and when this information is recorded and/or shared with the larger care team. Provides tips on how to effectively use EHRs to improve person-centered care.
Patient Resources
Open to Options. A decision-support counseling program accessed through Cancer Support Community affiliates or by phone.
Let’s Talk Treatment Options. A web-based tool for use by patients ahead of their appointment to help them think through questions about their diagnosis, their treatment options, and their goals, including what matters most right now.
ASCO Answers Fact Sheets: Produced by the American Society of Clinical Oncology (ASCO), available for most cancers and includes a list of “questions to ask the health care team” for patients.
