Explore this robust resource bank of curated nationally-available materials to support your NSCLC patients. Filter by target audience (your clinical care team or your patients), cancer stage, or by keyword. Email resources to a patient or colleague by selecting the envelope icon in the bottom right corner. Want to recommend another resource? Found a broken link? Please email resources@accc-cancer.org with any comments or questions. We will work to keep this resource list up-to-date but due to the evolving nature of these resources, we appreciate your understanding if something is out-of-date.
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LUNGevity
Patient education handout to support patient health literacy as it relates to their biomarker testing results.
Association of Community Cancer Centers (ACCC)
ACCC educational programs and resources related to lung cancer. CME programs, blogs, tools, and more.
Association of Community Cancer Centers (ACCC)
Tools and resources shared by ACCC Cancer Program members. These programs have received LCA Screening Center of Excellence recognition. Resources include Sample Letters (Patients and Referring Providers), Questionnaires, Process and Flowcharts, and Marketing Materials.
American College of Radiology
Information from the American College of Radiology (ACR) on safe, effective lung cancer screening featuring the latest research, toolkits, and key patient information. Resources include webinars, patient decision aids, CME offerings, accrediation information, quality improvement templates and information, and smoking cessation guides,
American Society of Clinical Oncology (ASCO)
The American Society of Clinical Oncology (ASCO) promotes the use of written treatment plans and summary care plans to ensure appropriate coordination among the members of the extended care team. These templates and resources, developed by ASCO and others, are designed to support effective communication of a survivor’s health status and long-term care needs.
LUNGevity
Patient education handout to empower patients to ask their healthcare team about their biomarker status.
Global Resource for Advancing Cancer Education (GRACE)
GRACE is a nonprofit organization developed out of a commitment to improve the care that cancer patients receive by teaching patients and their families about their cancer, and the best and most current treatments. GRACE provides expert answers to questions directly from cancer patients and their families. The organization's goal is to provide free access to the latest information from experts on a particular cancer or aspect of oncology care. In addition to information about different cancer types, GRACE provides expertise on topics that cut across cancer types, like radiation oncology, oncology social work, and immunotherapy. For each cancer type, there are recent posts that are regularly updated by the faculty, along with archives of prior posts arranged by date and subject.
American College of Chest Physicians
Early diagnosis and treatment with surgery and/or new techniques of chemotherapy and radiation therapy may cure many patients with lung cancer. The CHEST Foundation's video on lung cancer biopsies explains how lung cancer is diagnosed and how biopsies can aid in creating targeted therapies.
LUNGevity
The LUNGevity Clinical Trials Finder uses clinicaltrials.gov to help people connect with lung cancer clinical trials. The Clinical Trials Finder's screening process helps user find nearby clinical trials trials, along with information and links to centers performing these studies.
Center for Medicare and Medicaid Services (CMS)
The Centers for Medicare & Medicaid Services (CMS) has determined that the evidence is sufficient to add a lung cancer screening counseling and shared decision-making visit, and for appropriate beneficiaries, annual screening for lung cancer with low dose computed tomography (LDCT), as an additional preventive service benefit under the Medicare program (criteria-dependent).
LUNGevity
This webpage in LUNGevity's Lung Cancer 101 program has information for patients on different steps and tests for making a lung cancer diagnosis including biopsies, imaging and lab tests, and molecular testing.
LUNGevity
Information on ordering booklets and materials to help patients learn about lung cancer, raise awareness in your community, and find out about LUNGevity's services and support for lung cancer survivors and their loved ones. LUNGevity's Patient Education Series offers 12 comprehensive booklets, written and with illustrations to help patients understand their diagnosis and treatment options. Available titles cover each type of lung cancer, NSCLC staging, clinical trials, biomarker testing, and various treatment types. Tri-fold brochures are available for lung cancer stages and treatment options, as well as for LUNGevity's support services.
Lung Cancer Research Foundation
The Lung Cancer Research Foundation grant program provides funding for research into the prevention, diagnosis, treatment and cure of lung cancer.
GO2 Foundation for Lung Cancer
The GO2 Foundation for Lung Cancer provides services and referrals to help patients along their cancer journey. For support, contact the HelpLine at 1-800-298-2436 or email support@go2foundation.org. For general questions, call 202-463-2080.
GO2 Foundation for Lung Cancer
Downloadable educational materials on topics including available treatments, side effect and symptom management, diagnosis (including stage specific), support, and risk and screening.
Lung Cancer Foundation of America (LCFA)
In the Hope with Anwers video series from the Lung Cancer Foundation of America, there are three levels: INTRO – Basic information for those newly diagnosed. INTERMEDIATE – More in-depth discussions for those who now need deeper knowledge to navigate an initial treatment plan or to even find out what type of treatment might be their best option. IN-DEPTH – This deeper level is for lung cancer patients and their families that have been navigating the journey and now need the next level of information to understand how to bridge to other treatment options if they’ve experienced resistance or their lung cancer has progressed.
International Association for the Study of Lung Cancer (IASLC)
Staging Manual for Thoracic Oncology and related resources, available in PDF or to order. Handbook, laminate reference cards, posters, and more.
International Association for the Study of Lung Cancer (IASLC)
IASLC webinars provide in-depth coverage on a diverse array of topics related to the prevention, detection, diagnosis, and treatment of lung cancer and other thoracic malignancies. Each webinar includes a question-and-answer session that allows users to interact directly with experts in the field.
American Cancer Society
Information for patients on immunotherapy for cancer focused on immune checkpoint inhibitors and their role in treating some individuals with non-small cell lung cancer (NSCLC) .
American Cancer Society
Information from the American Cancer Society for patients who living as a lung cancer survivors.
GW Cancer Center at George Washington University
Using this toolkit, organizations may engage in robust social media outreach founded on evidence-based communications during November, Lung Cancer Awareness Month.
LUNGevity and EmergingMed
LUNGevity partners with this free clinical trials matching service to help individuals in deciding whether to pariticpate in a clinical trial. EmergingMed helps patients identify lung cancer clinical trials for which they may be eligible – Clinical trial navigators are available Monday through Friday from 9:00 am to 5:00 pm ET at 877-769-4834.
GO2 Foundation for Lung Cancer
An A-Z glossary/dictionary of terms related to lung cancer.
LUNGevity
This phone helpline is open Monday through Thursday, 10:00 am to 6:00 pm, and Friday, 10:00 am to 5:00 pm (ET). Patients and family members can all as often as needed. LUNGevity offers tools to help patients navigate their lung cancer diagnosis. Callers can speak with an oncology social worker for help to better understand lung cancer and its treatment, learn new ways to cope with lung cancer, manage emotions such as anxiety or sadness, improve communication with their healthcare team, talk to their families about lung cancer, find reliable information, locate useful resources in thir communities, and manage financial challenges.
National Cancer Institute (NCI)
Lung-MAP is a cancer clinical trial designed to quickly and efficiently test new treatments for advanced non-small cell lung cancers. Lung-MAP is offered at hospitals and clinics all over the country, making it easier for lung cancer patients to participate and get access to investigational treatments to fight their cancer. Patients who enroll in Lung-MAP get a state-of-the-art genomic profile to determine the genomic alterations, or mutations, which may drive the growth of their cancer. Based on those results, patients are matched to a treatment being tested on Lung-MAP. If there isn’t a genomic “match,” patients have an option of receiving immunotherapy treatments used in the trial.
National Cancer Institute (NCI)
Lung-MAP is a cancer clinical trial designed to quickly and efficiently test new treatments for advanced non-small cell lung cancers. Lung-MAP is offered at hospitals and clinics all over the country, making it easier for lung cancer patients to participate and get access to investigational treatments to fight their cancer. Patients who enroll in Lung-MAP get a state-of-the-art genomic profile to determine the genomic alterations, or mutations, which may drive the growth of their cancer. Based on those results, patients are matched to a treatment being tested on Lung-MAP. If there isn’t a genomic “match,” patients have an option of receiving immunotherapy treatments used in the trial.
American Lung Association
This screening eligibility quiz will lets individuals know if they should talk to their doctor about being screened for lung cancer via low-dose CT scan. Screening is key to early detection—when lung cancer is diagnosed at an early stage it is more likely to be curable.
American College of Radiology
This is the American College of Radiology's resource page for Lung Imaging Reporting and Data System (Lung-RADS), the Lung Cancer Screening Registry, and other educational materials related to lung cancer screening.
Inspire
Inspire’s Lung Cancer Survivors' community is offered in partnership with the American Lung Association. With more than 90,000 members, this lung cancer support group is for patients and their caregivers living with lung cancer.
Lung Cancer Foundation of America (LCFA)
These Lung Cancer Survivor stories recount stories of courage, stories of triumph over unbelievable adversity, and stories of hope. Many of the people highlighted in these stories had their first brush with this disease via a stage IV lung cancer diagnosis.
American Lung Association
A worksheet for providers to use with patients so that individuals understand their treatment options, and consider their goals and their preferences.
LUNGevity
The program provides volunteers who are available to offer information about their personal experiences with clinical trials to fellow lung cancer patients who are considering these as a treatment option.
GO2 Foundation for Lung Cancer
Lung cancer treatments are increasing at a rapid pace, making it challenging for patients to find and understand their options. LungMATCH allows individuals to be informed and guided in a manner that works best for them.
LUNGevity
Interactive worksheet for patients to better understand where they are in their lung cancer journey; suggested questions to improve and inform their conversations with their healthcare team.
RadiologyInfo.org
Needle biopsy of the lung uses imaging guidance to help locate a nodule or abnormality and remove a tissue sample for examination under a microscope. A biopsy may be necessary when imaging tests cannot confirm that a nodule is benign, or a nodule cannot be reached by bronchoscopy or other methods. Needle biopsy is less invasive than surgical biopsy and may not require general anesthesia.
Society for Immunotherapy for Cancer
An overview of immunotherapy for NSCLC, including the building blocks of the immune system and immunotherapy, some of the FDA approved immunotherapy treatments, potential side effects, and the importance of clinical trials.
CenterWatch
A listing of NSCLC medical research trials actively recruiting patient volunteers. Individuals can search for closest city to find more detailed information on a research study in their area.
National Cancer Institute (NCI)
National Cancer Institute (NCI)
American Cancer Society
About NSCLC for Spanish speakers. La información sobre el cáncer de pulmón no microcítico.
Association for Molecular Pathology (AMP)
AMP Molecular-in-My-Pocket™ Cards are authored by subject matter experts on the AMP Training & Education Committee. All of the cards are reviewed annually by committee experts and, if necessary, updated with the most current information.
American Lung Association
Can diet help fight lung cancer? There is no data to support that eating any one food or taking any supplement will help cure or fight lung cancer. Consumers should be wary of any claims that a certain food or supplement will cure their cancer.
OncoLink
The OncoLife Survivorship Care Plan is a comprehensive care plan that is individualized based on responses to an online questionnaire. This tool can be used by healthcare providers to create care plans in busy clinics or for patients to create and review with their providers.
Association of Community Cancer Centers (ACCC)
ACCC developed this model (or framework) to assist cancer programs in improving care coordination in the delivery of lung cancer. Cancer programs/practices can use the online interactive tool, to assess the current state of lung cancer care coordination in 12 assessment areas. Individualized results are sent to programs completing the assessment. These include the model's steps for improving care in each area to facilitate quality improvement (QI) project planning. Includes a crosswalk of data metrics to existing quality and accreditation measures (i.e., QOPI, CoC, Medicare MIPS, and more).
GO2 Foundation for Lung Cancer
GO2 Foundation for Lung Cancer
GO2 Foundation’s Patient Education Handbook – Navigating Lung Cancer: 360° of HOPE is a comprehensive, centralized, up-to-date patient resource exclusively devoted to lung cancer and vetted by experts in the field. It provides detailed information in laymen’s terms and in an easy-to-read format. The handbook is the culmination of years of research, as well as conversations with experts and patients, resulting in a compilation of information found in numerous print and Internet resources. Order a free copy or download online.
Agency for Healthcare Research and Quality (AHRQ)
Patient navigation programs for all cancer types are quite diverse with regard to navigators' characteristics and program structure. Lung cancer patients face unique challenges in managing their care. See also ACCC's Improving Care Coordination: A Model for Lung Cancer, which includes an assessment area focused on navigation services.
International Association for the Study of Lung Cancer (IASLC)
Poster available for download (PDF) or print.
College of American Pathologists (CAP)
The College of American Pathologists (CAP) Cancer Reporting Protocols provide guidelines for collecting the essential data elements for complete reporting of malignant tumors and optimal patient care.
GO2 Foundation for Lung Cancer
A guide of suggested questions for patients to use with their healthcare team.
American Lung Association
The American Lung Association and The University of Texas MD Anderson Cancer Center have partnered to produce this toolkit on coverage for LDCT screenings for individuals at high risk for lung cancer in state Medicaid programs.
College of American Pathologists (CAP)
The CAP Cancer Reporting Protocols provide guidelines for collecting the essential data elements for complete reporting of malignant tumors and optimal patient care.
National Cancer Institute (NCI)
The clinical trials on this list are for non-small cell lung cancer treatment. All trials on the list are supported by NCI.
GO2 Foundation for Lung Cancer
Patient-friendly information on clinical trials.
Association for Molecular Pathology (AMP)
Designed for patients, this videos explores lung biomarker guidelines.
LUNGevity
This brochure provide "need to know" information for patients about clincial trials DIscusses assessing whether a clinical trial may be right for the patients plus resources to help patients locate appropriate clincial trial options.
LUNGevity
Radiation therapy is an important but often forgotten treatment regimen in lung cancer. Nearly 95% of lung cancer patients will receive radiation therapy at some point in their treatment journey. This lung cancer-specific radiation therapy booklet is designed to help patients understand their radiation therapy treatment.
LUNGevity
Lung cancer is treatable at all stages, including stage IV, which is the focus of this booklet. Information covered includes discussion of what lung cancer staging is, how lung cancer staging is determined, and why it's important for patients to understand their lung cancer stage and stage-apropriate treatment options. This booklet will help your patient understand what lung cancer staging is, find out how lung cancer stages are determined, learn what stage IV non-small cell lung cancer is, as well as the treatment options are for stage IV non-small cell lung cancer.
LUNGevity
Patient education handout to help patients with advanced stage NSCLC ask the right questions, learn about biomarker testing, and address some FAQs.
LUNGevity
A link to the section in LUNGevity's Lung Cancer 101 program with information for patients on the different healthcare team members with whom they may interact with during the course of their treatment.