Explore this robust resource bank of curated nationally available materials to support your patients with ovarian cancer. Contents can be filtered by specifying provider- or patient-specific resources, or search by keyword. Email resources to a patient or colleague by selecting the envelope icon in the bottom right corner. Want to recommend another resource? Found a broken link? Please email resources@accc-cancer.org with any comments or questions.
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#gyncsm Community
A community for those impacted by gynecologic cancers
National Ovarian Cancer Coalition (NOCC)
This brief video raises awareness about risk factors, symptoms, and early detection of ovarian cancer
Gynecologic Oncology
"The mAGIC intervention did not result in increased uptake of genetic counseling, however it provided significant secondary benefits, including increased participants' knowledge about hereditary ovarian cancer, self-efficacy, and their reported communication with family members."
Get Palliative Care
This patient's story highlights how palliative care can improve quality of life with ovarian Cancer
Ovarian Cancer Research Alliance (OCRA)
An overview of ovarian cancer causes, staging, symptoms, treatment, etc.
Ovarian Cancer Research Alliance (OCRA)
"Presented by a physician and a research scientist, both experts in the field of ovarian cancer, this video provides important information in clear and simple language that is easily understandable by non-medical professionals. An ovarian cancer survivor and clinical trials participant offers the patient perspective, and valuable advice from her own experiences."
AnCan and National Ovarian Cancer Coalition (NOCC)
Ovarian Cancer Virtual Support Group
Foundation for Women's Cancer
"This booklet will take you through the basics of what you need to know about CA 125 — what it is, what it’s measuring, and what the values mean."
Cancer and Careers
This website provides resources to help people with cancer remain successful in the workplace.
CancerCare
"CancerCare provides telephone, online and face-to-face counseling, support groups, education, publications and financial and co-payment assistance."
Cancer and Careers
A checklist to help you facilitate a conversation with your patient on balancing work & cancer.
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about the treatment of pediatric ovarian cancer."
National Cancer Institute
"This PDQ cancer information summary has current information about the treatment of childhood ovarian cancer."
Clearity Foundation
This website provides information and resources to support women with ovarian cancer.
Clearity Foundation
This webpage provides basic information about clinical trials
Ovarian Cancer Research Alliance (OCRA)
This webpage addresses the common misconceptions about clinical trials
Ovarcome and American Association For Cancer Research
Dr. James Brenton, Senior Group Leader: Functional Genomics of Ovarian Cancer laboratory, Cancer Research UK (CR-UK) Cambridge Institute discusses Clinical Trials & Personalized Therapy For Women with Ovarian Cancer
National Cancer Institute
This webpage answers frequently asked questions about clinical trials and insurance coverage
Ovarian Cancer Research Alliance (OCRA), Society of Gynecologic Oncology, and Foundation for Women’s Cancer (FWC)
This slide deck presentation provides an overview of Ovarian Cancer Clinical Trials
Foundation for Women's Cancer
"This information will help you to understand the process and objectives of clinical trials so you can make a decision about participating in a clinical trial."
U.S. National Library of Medicine
"ClinicalTrials.gov is a registry and results database of publicly and privately supported clinical studies of human participants conducted around the world."
Ovarian Cancer Research Alliance (OCRA)
An overview of clinical trials and why patients should participate in clinical trials
National Ovarian Cancer Coalition (NOCC)
"Dr. Robert M. Arnold, Leo H Criep Chair in Patient Care at the University of Pittsburgh School of Medicine provides us with key tools and offers ways we can better discuss our treatment and general health issues with our doctors."
Ovarian Cancer Research Alliance (OCRA)
This is a brief article about a research study of a combinations of remote pre- and post-test genetic counseling for cancer risk
CancerCare
Fact sheet about ovarian cancer diagnosis and treatment and financial and emotional support
Tina's Wish
This page provides summaries of current ovarian cancer research projects
National Ovarian Cancer Coalition (NOCC)
"In this video, Dr. John Comerci leads a discussion on recurrence and openly answered many questions from our survivor audience."
National Ovarian Cancer Coalition (NOCC)
Denise Stahl, Executive Director of UPMC Palliative and Supportive Institute, discusses how we can deal with the side-effects and symptoms of treatment.
World Cancer Research Fund & The International Agency for Research on Cancer (IARC)
This report from the Continuous Update Project (CUP) analyzes global research on how diet, nutrition and physical activity affect cancer risk and survival
Cancer and Careers
"Watch the webinar recordings of the Educational Sessions on how to give patients guidance on working through treatment. Topics include: Where to Start, Working Through Treatment, Taking Time Off, Returning to Work and Health Insurance Options.
Ovarian Cancer Research Alliance (OCRA)
"This one-stop service provides a comprehensive yet simplified system for women to find and link to clinical trial options for ovarian cancer."
Facing Our Risk of Cancer Empowered (FORCE)
"FORCE is dedicated to improving the lives of individuals and families affected by hereditary breast and ovarian cancer."
National Society of Genetic Counselors (NSGC)
A directory to assist patients with finding genetic counselors.
Clearity Foundation
Use this search tool to find clinical trials for your ovarian cancer
Facing Our Risk of Cancer Empowered (FORCE)
Provides several resources to help patients find genetics experts
Ovarian Cancer Research Alliance (OCRA)
This is a template for keeping track of important care team contacts
Ovarian Cancer Research Alliance (OCRA)
This is a template for keeping track of important insurance information
Ovarian Cancer Research Alliance (OCRA)
This handout outlines a plan for monitoring health for years after there is no evidence of disease
Ovarian Cancer Research Alliance (OCRA)
This is a list of questions to ask your health care team to help you better understand your disease and treatment options
Ovarian Cancer Research Alliance (OCRA)
A template to document your cancer diagnosis and treatment history
Foundation for Women's Cancer
Fact sheets, booklets, videos, and other educational materials available to print
Ovarcome and American Association For Cancer Research
"Speaker: Dr. Karen H. Lu OVARCOMING CANCER Annual Conference 2019 Professor and Chair, J. Taylor Wharton Distinguished Chair Division of Gynecologic Oncology, MD Anderson Cancer Center"
National Society of Genetic Counselors (NSGC)
A brief overview of the information that can be obtained from genetic testing for ovarian cancer
Facing Our Risk of Cancer Empowered (FORCE)
Learn about genes and cancer, signs of hereditary cancer, genetic counseling, types of genetic tests and what results mean for you and your family.
Society of Gynecologic Oncology (SGO)
Peer Reviewed Women’s Cancer Education
Journal of Clinical Oncology
Journal article outlining ASCO recommendations on genetic and tumor testing for women diagnosed with epithelial ovarian cancer based on available evidence and expert consensus.
Get Palliative Care
"Getpalliativecare.org is a website providing clear, comprehensive palliative care information for people living with a serious illness. "
Foundation for Women's Cancer
This 19-minute video provides useful information for patients interested in participating in a gynecologic cancer clinical trial
Foundation for Women's Cancer
This plan outlines strategies for maintaining a healthy lifestyle following a gynecologic cancer diagnosis
Facing Our Risk of Cancer Empowered (FORCE)
Use the tool to find and participate in research focused on hereditary cancers
Cancer.net
Information Sheet about Hereditary Breast and Ovarian Cancer
Facing Our Risk of Cancer Empowered (FORCE)
Learn about Hereditary Breast and Ovarian Cancer Syndrome (HBOC)
Clearity Foundation
This webpage provides information about the clinical trial process and phases and common inclusion and exclusion criteria
Gynecologic Oncology
"Germline mutations occur in approximately 25% of patients with epithelial ovarian cancers while somatic BRCA mutations are estimated at 5–7%. The objectives of this study were to determine the rate of germline and somatic testing in women with ovarian cancer and to identify disparities in testing at a comprehensive cancer center (CCC) and a safety net hospital (SNH)."
National Ovarian Cancer Coalition (NOCC) and Savor Health
Personalized nutrition guidance via text
Get Palliative Care
This online tool provides questions to help patients determine whether palliative care might be right for them
Ovarian Cancer Research Alliance (OCRA)
A list of resources for women who are newly diagnosed with ovarian cancer
Clearity Foundation
This webpage describes options for observation and maintenance after therapy is completed
National Ovarian Cancer Coalition (NOCC)
In this video, Dr. Susan Stollings leads a discussion on how to handle moments of uncertainty.
BMC Cancer
"The MAGENTA (MAking GENetic Testing Accessible) trial is a nationwide randomized study designed to compare the effectiveness of online genetic education with pre- and post-test telephone genetic counseling to three potentially more accessible alternative approaches: online genetic education with optional telephone counseling, online genetic education with required pre-test telephone genetic counseling, and online genetic education with required post-test telephone genetic counseling."
Ovarcome and American Association For Cancer Research
Speaker: Dr. Aparna Kamat OVARCOMING CANCER: Annual Conference 2019 Division Chief, Houston Methodist Gynecologic Oncology
Cancer and Careers
Healthcare professionals are uniquely positioned to help patients navigate between cancer and work.
Ovarcome and American Association For Cancer Research
Dr. David Bowtell, Head of the Cancer Genomics and Genetics Program, Peter MacCallum Cancer Centre, Australia discusses Measuring & Managing Response To Ovarian Cancer Treatment
BMC Cancer
"Somatic mutation analysis by next-generation sequencing, in addition to germline BRCA1/2 mutation analysis, should become the standard of care for managing women with high-grade serous ovarian cancer to widen the indication of poly (ADP-ribose) polymerase inhibitors."
National Ovarian Cancer Coalition (NOCC)
"The NOCC provides information to assist newly-diagnosed patients, hope to Survivors, and support to caregivers."
National Society of Genetic Counselors (NSGC)
"The National Society of Genetic Counselors (NSGC) promotes the professional interests of genetic counselors and provides a network for professional communications."
National Comprehensive Cancer Network (NCCN)
This tool helps cancer teams measure patients' distress. It provides an indicator of a patient's emotional health. It also helps patients communicate emotional, social, spiritual, etc. problems that have been a recent cause of distress.
National Comprehensive Cancer Network (NCCN)
This website provides the list of NCCN Clinical Practice Guidelines in Oncology
National Comprehensive Cancer Network (NCCN)
Patient Resource page to help patients navigate to get the best ovarian cancer treatment
National Comprehensive Cancer Network (NCCN)
"This quick guide summarizes key points from the complete NCCN Guidelines for Patients with Ovarian Cancer."
Ovarcome and American Association For Cancer Research
"Dr. Kunle Odunsi, Chair, Department of Gynecologic Oncology, The M. Steven Piver Professor of Gynecologic Oncology & Executive Director, Center for Immunotherapy, Roswell Park Cancer Institute discusses the role of immunotherapy and combination therapy in ovarian cancer"
Clearity Foundation
This webpage provides information about treatments for women newly diagnosed with ovarian cancer
The New England Journal of Medicine
"Niraparib, an inhibitor of poly(adenosine diphosphate [ADP]–ribose) polymerase (PARP), has been associated with significantly increased progression-free survival among patients with recurrent ovarian cancer after platinum-based chemotherapy, regardless of the presence or absence of BRCA mutations. The efficacy of niraparib in patients with newly diagnosed advanced ovarian cancer after a response to first-line platinum-based chemotherapy is unknown."
Ovarian Cancer Research Alliance (OCRA)
This article summarizes the recent FDA approval of niraparib (Zejula, GlaxoSmithKline) as a first-line maintenance treatment for advanced epithelial ovarian, fallopian tube, or primary peritoneal cancer, regardless of BRCA mutation status.
Ovarian Cancer Research Alliance (OCRA)
OCRA offers free educational webinars on topics related to ovarian cancer and ovarian cancer research. You can view and listen to archived copies of these presentations below.
The New England Journal of Medicine
"Olaparib has shown significant clinical benefit as maintenance therapy in women with newly diagnosed advanced ovarian cancer with a BRCA mutation. The effect of combining maintenance olaparib and bevacizumab in patients regardless of BRCA mutation status is unknown."
Foundation for Women's Cancer
This five-minute video describes the roles of the cancer care team.
Facing Our Risk of Cancer Empowered (FORCE)
FORCE has compiled this list of suggestions from volunteers to help women prepare for oophorectomy surgery.
American College of Obstetricians and Gynecologists’ (ACOG) Committee on Gynecologic Practice
"ACOG information on the benefit of salpingectomy for cancer reduction, the feasibility of salpingectomy during vaginal hysterectomy, and long-term follow-up of women after salpingectomy"
Ovarcome
Financial assistance package designed for ovarian cancer patients
Ovarcome and American Association For Cancer Research
"Dr. Lee Zou, Professor of Pathology, Harvard Medical School & Associate Scientific Director, Massachusetts General Hospital Cancer Center discusses Ovarcoming PARP Resistance In BRCA Deficient Ovarian Cancers"
Clearity Foundation
This webpage provides information about the symptoms, stages, histology, and role of genomic mutation in ovarian cancer
Ovarcome and American Association For Cancer Research
"Dr. Ronny Drapkin, Director, Gynecologic Cancer Research, Basser Center for BRCA, Director, Ovarian Cancer Research Center Franklin Payne Associate Professor of Pathology in Obstetrics & Gynecology, Upenn; discusses guidance for high risk women: Ovarian Cancer Genetics"
Ovarian Cancer Research Alliance (OCRA)
OCRA's website provides information about funding research, advocating for patients, and supporting survivors
National Ovarian Cancer Coalition (NOCC)
This card outlines the risks, signs, and symptoms of ovarian cancer
Society of Gynecologic Oncology (SGO) & Foundation for Women’s Cancer (FWC)
This toolkit provides resources that help patients manage information from diagnosis through follow-up
Foundation for Women's Cancer
"This booklet will take you through the basics of what you need to know about ovarian cancer."
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about the treatment of ovarian epithelial, fallopian tube, and primary peritoneal cancer."
National Cancer Institute
"This PDQ cancer information summary has current information about the treatment of ovarian epithelial, fallopian tube, and primary peritoneal cancer."
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about the treatment of ovarian germ cell tumors."
National Cancer Institute
"This PDQ cancer information summary has current information about the treatment of ovarian germ cell tumors."
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about the treatment of ovarian low-malignant potential tumors."
National Cancer Institute
"This PDQ cancer information summary has current information about the treatment of ovarian low-malignant potential tumors."
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about ovarian, fallopian tube, and primary peritoneal cancer prevention."
National Cancer Institute
"This PDQ cancer information summary has current information about ovarian, fallopian tube, and primary peritoneal cancer prevention."
National Cancer Institute
"This PDQ cancer information summary for health professionals provides comprehensive, peer-reviewed, evidence-based information about ovarian, fallopian tube, and primary peritoneal cancer screening."
National Cancer Institute
"This PDQ cancer information summary has current information about ovarian, fallopian tube, and primary peritoneal cancer screening."
National Cancer Institute
"Explore the links on this page to learn more about treatment, prevention, screening, research, and clinical trials for these conditions."
National Cancer Institute
"Explore the links on this page to learn more about treatment, prevention, screening, research, and clinical trials for these conditions."
Ovarcome and American Association For Cancer Research
Information on a variety of ovarian cancer topics ranging from Prevention, Diagnosis, Treatment & Survivorship
Annals of Oncology
This is a prospective study of the impact of a brief course of psychological support on self-reported depression, fear of progression (FoP), and quality of life (QOL) in patients (pts) following chemotherapy for primary or recurrent ovarian cancer.
Get Palliative Care
"The Palliative Care Provider Directory is a resource to help you or a loved one locate palliative care in your area. It includes all programs that have listed themselves with us. "
Get Palliative Care
This handout for patients and families provides basic information about palliative care
Foundation for Women's Cancer
"This fact sheet provides a description of palliative care and lists resources where you can find additional information about providers."
Society of Gynecologic Oncology (SGO)
"This session includes seminal data, late-breaking abstracts and more from the SGO 2020 Annual Meeting. Moderators include Thomas Herzog of the University of Cincinnati Cancer Institute and Kathleen Moore, SGO 2020 Annual Meeting Program Co-Chair."
Society of Gynecologic Oncology (SGO)
"Tune in for a 30-minute discussion of PARP maintenance after initial chemotherapy. This podcast discusses four trials examining the use of PARP inhibitors with initial chemotherapy that have recently been reported."
Society of Gynecologic Oncology (SGO)
"This slide deck contains useful tips for managing PARP side effects when used to treat gynecologic cancers. This is a printable document that can be downloaded for use in-clinic or viewed on a desktop or mobile device."
National Cancer Institute
Results from three new clinical trials show that the PARP inhibitors might benefit women who are newly diagnosed with advanced ovarian cancer.
Ovarcome and American Association For Cancer Research
"Dr. Ursula Matulonis, Director and Program Leader, Gynecologic Oncology, Dana-Farber Cancer Institute and Professor of Medicine, Harvard Medical School discusses the highs & lows of PARP inhibitors, the recent advances, and genetic relationships between breast and ovarian cancers with Ovarcome."
Ovarcome and American Association For Cancer Research
Speaker: Dr. Ursula Matulonis Chief, Division of Gynecologic Oncology, Dana Farber Cancer Institute OVARCOMING CANCER: Annual Conference 2019 Professor of Medicine, Harvard Medical School
Gynecologic Oncology
"Current risk-reducing salpingo-oophorectomy (RRSO) guidelines for individuals with BRCA1/2 mutations do not account for risk variability due to BRCA1/2 cluster region mutations that are associated with varying risks for the development of breast and ovarian cancer. We assessed whether current recommendations are appropriate for individual patients considering mutation-specific risks."
Clinical Obstetrics and Gynecology
"Women should be counseled on the pros and cons of hysterectomy in the setting of reducing the risk of other cancers; eliminating the risk of endometrial cancer in Lynch Syndrome, potential risk of serous/serous-like endometrial cancer in BRCA1 carriers, and elimination of progestogen therapy that may increase breast cancer risk."
Ovarcome and American Association For Cancer Research
Dr. Le-Ming Shih, Director, TeLinde Gynecologic Pathology Laboratory Professor of Gynecology and Obstetrics. Johns Hopkins Medicine, discusses Prevention & Screening In Ovarian Cancer
Ovarian Cancer Research Alliance (OCRA)
Access this portal to apply for OCRA-funded research grants
College of American Pathologists (CAP)
"The CAP Cancer Reporting Protocols provide guidelines for collecting the essential data elements for complete reporting of malignant tumors and optimal patient care."
Foundation for Women's Cancer
"This fact sheet provides a description of psychosocial issues and what you can do to manage them."
National Ovarian Cancer Coalition (NOCC)
This brochure addresses quality of life concerns for women with ovarian cancer
Triage Cancer
This handout provides general information about fertility preservation
Triage Cancer
This handout provides a list of the resources to assist health care professionals as they help their patients navigate through practical cancer survivorship issue
JNCI Cancer Spectrum
This study is a systematic review and meta-analysis on the role of race, socioeconomic status, and healthcare access on disparities in ovarian cancer treatment and mortality
Ovarcome and American Association For Cancer Research
Speaker: Dr. Dineo Khabele OVARCOMING CANCER: Annual Conference 2019 Vice Chair for Research, Director, Division of Gynecologic Oncology University of Kansas, Medical Center
Ovarian Cancer Research Alliance (OCRA)
"The National Cancer Institute offers the following questions to consider asking your doctor, to help guide you through treatment, surgery and chemotherapy."
Clearity Foundation
This webpage describes treatment options for recurrent or progressive ovarian cancer
Swedish Cancer Institute and the Marsha Rivkin Center for Ovarian Cancer Research
A Pamphlet for women at increased risk of developing ovarian cancer
National Ovarian Cancer Coalition (NOCC)
Resource guide that covers the following topics: Understanding ovarian cancer, Managing Your Treatment and Coping With Side Effects, Glossary of Cancer Terms, and Resources
National Ovarian Cancer Coalition (NOCC)
This booklet will help you make informed decisions about your treatment and be proactive in managing your health
JAMA
"US Preventive Services Task Force (USPSTF) recommendation on risk assessment, genetic counseling, and genetic testing for BRCA-related cancer"
Ovarcome and American Association For Cancer Research
"Dr. David Spriggs, Winthrop Rockefeller Chair of Medical Oncology, Memorial Sloan Kettering Cancer Center, discusses the role of Role of immunotherapy In Recurrence Management For Ovarian Cancer"
Our Way Forward
Helpful resources for ongoing care beyond the medical treatment regimen assigned by your doctor
Sexual Medicine
"This study highlights the importance of sexuality in quality of life and the impact that ovarian cancer may have on a woman’s sexual experience."
Foundation for Women's Cancer
"This fact sheet covers issues about sexuality and intimacy that you might have questions about following treatment for gynecologic cancer."
Society of Gynecologic Oncology (SGO)
Peer Reviewed Women’s Cancer Education
Tina's Wish
This handout outlines the signs and symptoms of ovarian cancer
Clearity Foundation and Susan Poorman Blackie Ovarian Cancer Foundation
Program for ovarian cancer psychosocial support
National Cancer Institute
"Results of a large NCI-sponsored clinical trial, GOG-0213, show that this secondary surgery does not improve how long patients with recurrent ovarian cancer live."
Clearity Foundation
Information about how the Clearity Foundation can be a useful resource for physicians
Tell Every Amazing Lady® About Ovarian Cancer (T.E.A.L.®)
"Tell Every Amazing Lady® About Ovarian Cancer (T.E.A.L.®) is a nonprofit organization dedicated to promoting awareness and education of ovarian cancer, providing support and resources to survivors and caregivers, and raising funds for research."
Journal of Genetic Counseling
"The goals of this study were to: 1) examine the factors associated with HBOC knowledge and 2) assess the impact of knowledge on GCT engagement in a sample of Black survivors at risk of HBOC. "
Ovarian Cancer Research Alliance (OCRA)
This webpage outlines some side effects and experiences you may not be anticipating
Tina's Wish
Tina's Wish is a non-profit organization dedicated to funding groundbreaking scientific research for the prevention and early detection of ovarian cancer.
Ovarcome and American Association For Cancer Research
Speaker: Dr. Anil Sood Professor & Vice-Chair for Translational Research, Director, Blanton Davis OCRP, Co-Lead Moon Shot Program Division of Gynecologic Oncology, MD Anderson Cancer Center
Clearity Foundation
The Treatment Decision Support scientific team will explain treatment options and tumor testing results and provide patients with potential questions and other information that they can discuss with their physicians.
Facing Our Risk of Cancer Empowered (FORCE)
An overview of the options for treating hereditary ovarian cancer
Clearity Foundation
This webpage provides information about the variety of treatment options for ovarian cancer
CancerCare
Plain language information about ovarian cancer
Triage Cancer
"Triage Cancer is a national, nonprofit organization that provides education on the practical and legal issues that may impact individuals diagnosed with cancer and their caregivers, through events, quick guides, and cancer resources."
Clearity Foundation
This webpage provides information tumor blueprints, how to get your tumor blueprints, and how to read your tumor blueprint reprint
Facing Our Risk of Cancer Empowered (FORCE)
FORCE has compiled resources addressing the risk for cancer
Foundation for Women's Cancer
A 7-minute video about inherited cancer syndromes, genetic testing and genetic counselors
Society of Gynecologic Oncology (SGO) & Foundation for Women’s Cancer (FWC)
This video resource, "explains the main phases of clinical trials, as well as the possible differences between treatment arms"
National Ovarian Cancer Coalition (NOCC)
Dr. Kristin Zorn discusses her research into the genetic risk for ovarian cancer.
National Ovarian Cancer Coalition (NOCC)
"Neurocognitive expert Heather Palmer, Ph.D. explores cancer-related brain fog and teaches simple and effective evidence-based techniques to help people navigate their way back to thinking well."
National Ovarian Cancer Coalition (NOCC)
This booklet provides information about ovarian cancer risk, symptoms, treatment options and more.
Ovarian Cancer Research Alliance (OCRA)
An Infographic About Ovarian Cancer
National Ovarian Cancer Coalition (NOCC)
This booklet provides information and resources for caregivers and the support network of women with ovarian cancer