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Advisory Committee

Thank you to the project’s Advisory Committee and partner organizations that came together to inform this work.


Lawrence C. An, MD
Director, Center for Health Communications Research
Scientific Director, Cancer Survivorship Program
University of Michigan
Alan Balch, PhD
CEO
National Patient Advocate Foundation

Dr. Alan Balch, PhD, is the chief executive officer and executive board member of Patient Advocate Foundation and National Patient Advocate Foundation. He has a decade of executive leadership experience in the nonprofit sector with an emphasis on consensus-building and collaboration. Dr. Balch has led numerous federal advocacy efforts on a range of issues at the legislative and regulatory levels, and has helped to organize and lead a coalition that successfully fought for improvements in the regulatory process for the review of cancer drugs at the Food and Drug Administration (FDA). He also contributed to the development of key federal policies related to the Affordable Care Act.

Dr. Balch serves on a number of committees including the Guiding Committee for the Health Care Payment Learning and Action Network (LAN), the Finance Committee for the National Health Council in Washington, D.C., and the external advisory board for the Hutchinson Institute for Cancer Outcomes Research (HICOR). Dr. Balch recently accepted an invitation to join the inaugural board for the American Journal of Managed Care’s (AJMC) newest initiative, the Institute for Value-Based Medicine (IVBM).

Anthony Eleftherion,
Director of Communications
Health Research for Action, UC Berkeley
Allison Harvey, MPH, CHES
Senior Manager, Health Care Professional Education
George Washington Cancer Center
Susan Hedlund, LCSW
Manager, Patient & Family Services
Knight Cancer Institute
Oregon Health & Sciences University
Rebecca Kirch, JD
Executive Vice President for Healthcare Quality and Value
National Patient Advocate Foundation
Allison Knutson, CCRP
Manager of Accreditation and Standards
American College of Surgeons Commission on Cancer
Jenny J. Lin, MD, MPH
Associate Professor
Division of General Internal Medicine
Mount Sinai School of Medicine
Nina Miller, MSSW, OSW-C
Cancer Liaison Initiatives Manager
American College of Surgeons Commission on Cancer
Linda Neuhauser, DrPH, MPH
Principal Investogator
Health Research for Action, UC Berkeley
Julia Olff, MBA, CHES
Patient Educator Consultant
Lynne Padgett, PhD
Program Director, NCCCP
National Cancer Institute
Frank Penedo, PhD
Program Leader, Cancer Control and Survivorship Research Program
Director, Cancer Survivorship Institute
Robert H. Lurie Comprehensive Cancer Center of Northwestern University
Claire Saxton, MBA
Senior Director, Education
Cancer Support Community
Shockney_photo
Lillian D. Shockney, RN, BS, MAS
University Distinguished Professor of Breast Cancer; Administrative Director, the Johns Hopkins Breast Center
Administrative Director, The Johns Hopkins Cancer Survivorship Programs
Baltimore, Maryland

Lillie D. Shockney is the Johns Hopkins University Distinguished Service Professor of Breast Cancer; Administrative Director, Johns Hopkins Breast Center (since 1997); Director, Johns Hopkins Cancer Survivorship Programs; Professor of Surgery and Oncology, Johns Hopkins University School of Medicine; and co-creator of the Johns Hopkins Managing Cancer at Work Program. A two-time breast cancer survivor, Lillie has worked tirelessly to improve the care of breast cancer patients around the world. She has worked at Johns Hopkins since 1983.

She has written 15 books and more than 250 articles on cancer care, and is a nationally recognized public speaker on the subject of cancer with a focus on cancer survivorship. Lillie is also editor-in-chief of Journal of Oncology Navigation and Survivorship. She is the founder and director of the Academy of Oncology Nurse & Patient Navigators (AONN+). She is the consultant for breast cancer for national ABC News and Good Morning America, and is also consulted regularly by the Today Show and CNN. Currently, she serves on 34 medical advisory boards.

In 2008, the President of The Johns Hopkins University and the Johns Hopkins Board of Trustees appointed her to a chair as a University Distinguished Service Assistant Professor of Breast Cancer. This is the first time in the history of the institution that a hospital nurse has been appointed to a distinguished service designation. She was promoted to a Distinguished Service Associate Professor of Breast Cancer in 2009. In 2016, she was promoted to full professor and is the only nurse at Johns Hopkins to have a primary appointment in the School of Medicine and the only nurse to have reached the highest academic faculty ranking and appointed chair as a University Distinguished Service Professor of Breast Cancer.

She has received numerous awards and has been inducted into the Maryland Women Hall of Fame, and received the Women in Business Healthcare Trailblazer Award, and Johnson & Johnson’s most amazing nurse in America award.

Julie Silver, MD
Chair
American Congress of Rehabilitation Medicine

Partner Organizations

Academy of Oncology Nurse and Patient Navigators (AONN)
Lillie Shockney, RN, BS, MAS
Program Director and Co-founder, AONN+; Administrative Director, The Johns Hopkins Breast Center; Professor of Surgery and Oncology, Johns Hopkins University School of Medicine; Director, Cancer Survivorship Programs at the Sidney Kimmel Cancer Center at Johns Hopkins

American Cancer Society, Inc.
Lynne Padgett, PhD
Strategic Director, Hospital Systems

Cancer Support Community
Claire Saxton, MBA
Senior Director, Education

American College of Surgeons Commission on Cancer
Nina Miller, MSSW, OSW-C
Cancer Liaison Initiatives Manager
Allison Knutson, CCRP
Manager of Accreditation and Standards

Health Research for Action, UC Berkeley
Linda Neuhauser, DrPH, MPH, Principal Investigator
Anthony Eleftherion, MFA, Director of Communications
UC Berkeley Research Group

National Patient Advocate Foundation
Alan Balch, PhD, CEO
Rebecca Kirch, JD, Executive Vice President for Healthcare Quality and Value

Our Partners

American Cancer Society logo
Cancer Support Community Logo
American College of Surgeons

Health Research for Action UC Berkely
National Patient Advocate Foundation (NPAF) Logo

Our Supporter

LillyOncology-pponus-200x80-updated
Funding & Support provided by Lilly Oncology