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Financial Advocacy

The Association of Cancer Care Centers (ACCC) is committed to building the confidence of oncology financial advocates, connecting them with much-needed solutions to improve the patient experience. Through the Financial Advocacy Network’s tools and resources, ACCC empowers cancer programs and practices to proactively integrate financial health into the oncology care continuum and help patients gain access to high-quality care for a better quality of life.

For more information on this project, please contact the ACCC Provider Education department.

 

Featured Programs

Financial Advocacy Guidelines

These guidelines were created using a collaborative, consensus-based process to promote and guide the implementation of critical financial advocacy services in cancer programs and practices across the nation.

Financial Advocacy Boot Camp

Whether you are an experienced financial advocate or new to the field, the ACCC Financial Advocacy Boot Camp prepares you to help your patients and your program address the growing issue of financial toxicity.

Financial Advocacy Playbook

The ACCC Financial Advocacy Network brought together experts in financial advocacy to create this Playbook—a comprehensive tool to support onboarding and continuous learning for staff who deliver financial advocacy services.

Prior Authorization Clinic

ACCC is developing an educational program that will foster discussions on how to ease provider burden and ensure the best quality care for the patient when dealing with the utilization management technique known as prior authorization.

Financial Advocacy: Foundation of Biomarker Testing Courses

Learn the fundamentals of biomarker and diagnostic testing as it relates to financial navigation. Gain confidence in your ability to guide patients through the complex insurance process, practice clear communication strategies, and access helpful financial resources.

Financial Advocacy Toolkit

ACCC, its members, and partners have collected new and updated resources to help you develop, implement, and continue to deliver effective financial advocacy services in your cancer program or practice.

Patient Assistance & Reimbursement Guide

Access the most up-to-date anti-cancer medication assistance and reimbursement programs that are available to help alleviate the financial burden of cancer treatment. Search for applicable Oncology-Related Products and Companies and apply optional Coverage and Assistance Type filters to streamline your results.

FAN Community (ACCC Members Only)

The Financial Advocacy Network Community is a private forum for ACCC members to ask questions, share resources and experiences, and offer support for delivering financial advocacy services to your patients. You will need to login to your ACCC member account in order to access this benefit.

 

On-Demand Webinars

  • In this final webinar, hear from our experts Jordan Karwedsky, Financial Counselor, Green Bay Oncology, Wendi Waugh, BS, RT(R)(T), CMD, CRT, Administrative Director of SOMC Cancer Services & Ambulatory Infusion, Southern Ohio Medical Center, and Dr. Michael R. Gieske, Director of Lung Cancer Screening. Join us as we discuss prior authorization challenges in biomarker testing, importance of providing access to biomarker testing for underserved populations, how biomarkers are shaping the future of medicine, as well as what can be done at the policy level to allow for more access.

  • In the fifth webinar, we will hear from Angie Santiago, CRCS, Manager of Oncology Financial Advocacy, Sidney Kimmel Cancer Center at the Thomas Jefferson University Health System, and Chair of ACCC’s Financial Advocacy Network, and Sarah Shaw, Oncology Program Manager at St. Luke’s Cancer Institute in Boise, ID. Join us as we discuss importance of medical necessity in oncology and how clear denial data can help maximize reimbursement.

  • In the fourth webinar, we will hear from Gretchen Van Dyck, Financial Counselor from St. Vincent Hospital Regional Cancer Center and Rachelle Gill, Program/Department Coordinator II for Proton Therapy Appeals at Fred Hutchinson Cancer Center. Join us as we discuss radiation authorization submissions before treatment and strategies on how to work radiation authorization denials and appeals after treatment.

 

Cancer Buzz Podcasts

From Oncology Issues

 

From the ACCCBuzz Blog

Cost of Care and Prescription Meds Put Strain and Stress on AYA Survivors

By Jessica Kean
May 04, 2021
Finger Stacking Healthcare Blocks

Note: This article originally appeared April 22, 2021 on the Chidren’s Cancer Cause website


Survivors of adolescent and young adult (AYA) cancers face greater financial hardship in adulthood than adults without a cancer history, according to a study published this month in The Journal of the National Cancer Institute. This adds to a growing body of research about the significant financial burden of a cancer diagnosis, an issue Children’s Cancer Cause has been focused on for many years. 


This new study identified some of the specific financial burdens for AYA survivors, including problems and worries about paying medical bills. Researchers found that survivors of AYA cancers are more likely than adults without a cancer history to delay or forgo care and/or prescription medications due to cost. 


“The financial health of AYA survivors may never recover after cancer diagnosis without appropriate clinical and policy intervention,” wrote the authors in a companion article proposing directions for future research. “Employment disruption and employment discrimination are key areas for AYAs. Another area for future research is how best to identify and address financial anxiety. Financial hardship remains a huge burden for AYAs, and clinicians and researchers should prioritize addressing these outcomes.” 


At the Children’s Cancer Cause, we’ve been closely studying financial toxicity in childhood cancer survivors for many years and working to identify policy solutions. In a survey we conducted in partnership with the Patient Advocate Foundation in 2017-2018, we found: 

  • One in four childhood cancer survivors report that the cost of their cancer-related care impacted their ability to attend their college or university of choice.  

  • The financial burden facing survivors can be long-term: 30% of the survivors we surveyed reported that the cost of their care impacted their career course or job choice.  

  • Families are not receiving the information and support they need. When we asked families: “At any point in your child’s care, were you asked about any financial hardships your family may be experiencing related to food, energy, or housing?” more than half (55%) answered no.  


One parent of a child with cancer shared with us: “As a middle-class family with insurance we do not qualify for any aid or assistance from anywhere. We owe over $100,000 in medical debt, plus regular debt and lost wages. We will likely file bankruptcy in the next six months.” 


We surveyed families again last year to learn about the impact of Covid-19 and found that the pandemic dealt a devastating blow to many childhood cancer families already overburdened with medical bills and household expenses. Two-thirds of the families we heard from—and almost every survivor—reported experiencing a reduction in income as a result of COVID-19, with nearly 30% reporting a loss of employment. 


As we look ahead toward emerging on the other side of the pandemic, we continue to gather input on the ongoing needs and concerns of childhood cancer families and survivors that could potentially be addressed through legislative or policy proposals. Learning about your family’s experience is a vital part of this work: Take the survey

 

For those experiencing financial challenges, we urge you to use the Hope Portal, where you can search by your location, diagnosis, and need to find nonprofit organizations that are helping to alleviate the financial burdens of families battling childhood cancer.

Reprinted with permission from Children’s Cancer Cause


Related Content from ACCC:


Abstracts/Presentations