Small-population cancers, also referred to as low-incidence or “forgotten” cancers, are often defined as consisting of fewer than 40,000 patient cases annually in the US.
Caring for patients with less common cancers presents unique challenges for community–based cancer care providers. Nurses, social workers, and pharmacists, for example, see these diseases less frequently and need information to better support the physician and the patient. Physicians, too, can benefit from additional resources for treating small-population cancers, as they have limited time and resources to incorporate emerging clinical data into practice.
ACCC’s Improving Quality Care in Small-Population Cancers gives community-based cancer care providers the information they need to better care for their patients with small-population cancers, and works to raise awareness among the public and healthcare providers about the challenges presented by these rare diseases.
Each of ACCC's small-population cancers projects includes the following core components:
- Provider portal, an interactive website that provides both clinical and practical information and serves as the first stop for providers seeking information when treating a patient diagnosed with a small-population cancer.
- Community Resource Centers (CRCs), ACCC-member programs that serve as virtual "experts-in-residence” on small-population cancers for other community cancer programs.
- Effective practices, standards-based guidelines focused on three key competency areas: clinical, patient support, and program management.
To access the resources developed as part of this program, visit the pages below.