Practice patterns and resources are not well established for patients with small-population cancers such as pancreatic cancer. Many patients are treated at large academic medical centers after initial diagnoses in the community cancer program setting and returned to the community for follow-up. In addition, community cancer programs are challenged to keep up with evolving treatments, new chemotherapeutic agents, and the availability of clinical trials for patients with pancreatic cancer. As part of ACCC's Improving Quality Care in Small-Population Cancers, this project seeks to improve the quality of care for pancreatic cancer patients and their families treated at community cancer programs.
ACCC is pleased to partner on this project with the Pancreatic Cancer Action Network. The Pancreatic Cancer Action Network is a nationwide network of supporters working together to advance research, support patients and create hope for those affected by this disease. Its vision of progress is to double the survival rate for pancreatic cancer by 2020. Central to this organization’s mission is its Patient and Liaison Services (PALS) program that connects patients and their families with dedicated and highly trained staff who provide detailed information and resources, including treatment options and personalized clinical trials searches using its propriety database—the most comprehensive in the U.S.
- To raise awareness about the special needs of small-population cancers in the community setting, including how to stay up-to-date on the latest clinical information and treatment protocols around pancreatic cancer.
- To identify effective practices, including education materials and resources, for supporting pancreatic cancer patients through diagnosis, treatment, and follow-up, and how to best implement these effective practices in the community setting.
- To establish Community Resource Centers (CRCs) for pancreatic cancer in which community-based programs with expertise in meeting the unique needs of patients with pancreatic cancer are available to answer questions and provide direction to other programs.