Practice patterns and resources are not well established for patients with small-population cancers such as acute promyelocytic leukemia (APL). Many patients are treated at large academic medical centers after initial diagnoses in the community cancer program setting and returned to the community for follow-up. In addition, community cancer programs are challenged to keep up with evolving treatments, new chemotherapeutic agents, and the availability of clinical trials for patients with APL. As part of ACCC's "Treating Small-Population Cancers in the Community Setting," this project seeks to improve the quality of care for APL patients and their families treated at community cancer programs.
- To provide easy online access for members of the cancer care team to the latest clinical information, resources, and patient assistance programs for these patients.
- To identify "best practices," including educational and informational resources, for supporting APL patients through the diagnostic, treatment, follow-up, and end-of-life stages of their disease.
- To establish Community Resource Centers for APL in which community-based programs with expertise in the unique needs of patients with APL are available to answer questions and provide direction to other programs.